MDS UK Patient Support Group

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What to post where and general usage details, please read before posting

Moderator: Steering Committee

5

6

Tue Jan 24, 2012 8:39 pm

sophie

Details of upcoming events

Moderator: Steering Committee

32

74

Mon May 14, 2012 10:05 am

chris

Please post here your experiences of MDS as a patient, carer, family or friend

Moderator: Steering Committee

47

353

Thu May 17, 2012 11:03 am

davidmiller

Post here to make contact with others ... or to offer support in this way

Moderator: Steering Committee

41

130

Wed May 16, 2012 9:08 am

chris

Comments, thoughts and issues on any aspects of MDS

Moderator: Steering Committee

43

411

Fri May 18, 2012 8:05 pm

meerkat

Moderator: Steering Committee

5

120

Wed Oct 26, 2011 4:26 pm

chris

Moderator: Steering Committee

6

61

Fri May 18, 2012 4:37 pm

Annjeo

Posts related to the sub-type 5q deletion

Moderator: Steering Committee

2

11

Tue Apr 17, 2012 6:06 pm

sophie

MDS can affect children in some very rare cases. Please post here if you are a parent of a child with MDS.

Moderator: Steering Committee

1

1

Thu Apr 12, 2012 1:05 pm

sophie

For information about insurance companies able to offer coverage to those with pre-existing medical conditions - such as MDS. And new folder about Health or Life Insurance issues.

Moderator: Steering Committee

2

33

Wed Apr 04, 2012 12:44 pm

sophie

Moderator: Steering Committee

28

282

Thu Mar 15, 2012 2:53 pm

Jayne

Get in touch with others attending the Forum - ahead of time and keep in touch afterwards.

Moderator: Steering Committee

2

11

Tue Jun 07, 2011 3:25 pm

Jayne

A place to advertise your regional meetings, get togethers, formal or informal - so that others can find you - and you can post updates.

Moderator: Steering Committee

10

27

Thu Apr 05, 2012 2:17 pm

chris

We are extending our network to Ireland and N Ireland and aim to create a specific support network for MDS patients and carers there. Please register your interest - and use this platform to communicate.

Moderator: Steering Committee

3

4

Wed Mar 07, 2012 12:06 pm

sophie

Please post any useful / relevant links here for possible inclusion on the main website

Moderator: Steering Committee

14

24

Thu Jan 12, 2012 9:48 pm

Sheldon

Please post any problems you find in using the forum here

Moderator: Steering Committee

5

17

Thu Nov 11, 2010 1:49 pm

sophie

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Total posts 1620 | Total topics 259 | Total members 298 | Our newest member redballoon